Although we support lots of charities and local groups who are at need in our community – We are in partnership with Dravet Syndrome UK to help them, grow, support and raise money for those suffering from Dravet Syndrome.
Dravet Syndrome UK is a charity that is especially close to our heart as the 2 year old daughter of a dear friend was diagnosed at just 6 months old. Dravet Syndrome UK has greatly supported and helped her progress over the past year and a half – and has also given the tools and support to her Parents to understand and care for their daughter to enable her to thrive and grow into the sweet, kind and happy little girl that she is.
Dravet Syndrome is a catastrophic neurological condition causing severe seizures alongside other conditions such as learning disability, ataxia and autism.
Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education and awareness and support.
Dravet Syndrome affects 1:19,000 people with devastating outcomes. The Charity provides vital support to individuals and families impacted by Dravet and coordinate fundraising to help raise awareness and fund research into possible treatments.
Please keep your eyes peeled for our next Fundraising Event coming soon!